Blog

Acceptance of the truth of kidney disease is the first step

Acceptance of the truth of kidney disease is the first step

Maggie Ng Miu Man has been living with kidney disease for 35 years. She tells the story of when she underwent hemodialysis and had two kidney transplants. She also shares her experiences coping with her disease and how patients with kidney disease can be hopeful about the future. Everyone in the world must face their […]

28 Years of Living with Kidney Disease and Thriving

28 Years of Living with Kidney Disease and Thriving

Dawn Edwards tells the story of her journey with kidney disease on which she has gone from a failed kidney transplant to eventually home dialysis. She also shares her experiences about her advocacy work and the importance of raising awareness, especially in times of pandemic. My name is Dawn Edwards and I am a kidney […]

Receiving a kidney transplant after many wrong turns

Receiving a kidney transplant after many wrong turns

Peter Chakaya talks about the difficulties of receiving dialysis in Kenya, where it turned out to be very expensive and difficult to find a good doctor. Meanwhile,  as a result of misleading information, he struggled for many years to find a matching donor, only to finally receive a kidney from a family member. I am […]

A gift that made my son smile again

A gift that made my son smile again

Ruth Njeri tells the story of her son who suffered end-stage kidney disease at a very young age leading to him needing multiple organ transplantations. She shares her family’s efforts in finding matching donors and raise funds for medical bills on her son’s transplant path which started in Kenya and even let him as far India. My son, Brian Karuga, was […]

I lost my kidney due to PUJ (pelvic-ureteric junction) obstruction

I lost my kidney due to PUJ (pelvic-ureteric junction) obstruction

Chiara Improta suffered from a PUJ (pelvic-ureteric junction) obstruction. She chooses to share her story to raise awareness about her disease and to explain the medical steps that she had to take, including a nephrectomy,  in order to avoid further complications. I was watching TV in my room when suddenly, I felt a strong urge to […]

Don’t Pity Me, Pity My Situation

Don’t Pity Me, Pity My Situation

Joab Wako, a kidney transplant patient, is raising awareness about the reality of living with chronic conditions and the unfair way CKD patients are often treated. In particular, he describes the difficulties for a chronically ill patient to receive health insurance coverage in Kenya. As a person living with chronic kidney disease, I am always […]

My companion for life: Dialysis

My companion for life: Dialysis

Sara Ammar was diagnosed with Chronic Kidney Disease (CKD) when she was 32 years old. Ever since she has been writing a blog to spread positivity about living with CKD. She shares her experience of going through hemodialysis over the last four years and how she has learned to be grateful for what she has […]

A Slot in Dialysis

A Slot in Dialysis

Guillermo Garcia-Garcia is a nephrologist based in Mexico and he is sharing his experience with kidney disease. He describes the emotional story of a father struggling to get a slot in hemodialysis for his son and the difficulty for those in need to have access to treatment.  One of many days, by the morning, I’m […]

My Kidney Disease Journey

My Kidney Disease Journey

Theresa Mocek is a 38-year-old housewife living with Minimal Change Disease, IgA Nephropathy, and Nephrotic Syndrome. She shares her story with kidney disease, from sudden onset, treatment and remission at 19 years old to her relapse ten years later. Now she helps others struggling with the same problems she has faced living with CKD.   […]

My son’s kidney story [3/3]

My son’s kidney story [3/3]

Daniella Effrim-Botchey, tells of the real-life struggles of a mother-to-be whose unborn son who was diagnosed with posterior urethral valves (PUV). She poignantly describes the emotional work of coming to terms with the diagnosis and how she adapted to caring for her son whose kidneys would ultimately fail. When faced with difficult circumstances, she found […]

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