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Becoming a kidney patient advocate

Becoming a kidney patient advocate

Manvir Victor, a patient advocate and media figure from Malaysia, was diagnosed with kidney disease at a late stage. Thanks to a kidney donation from his wife, he was able to continue his life and is committed to being a voice for kidney patients in his country. I had no idea I was at high […]

A life dedicated to my kidney health

A life dedicated to my kidney health

Veronica Martinez, 44, a lawyer in Mexico, was diagnosed with a single kidney and vesicoureteral reflux at an early age, which led to severe kidney infections and resulted in a kidney transplant. Throughout her life, she had to take care of her health by putting it at the forefront of her life. I am a […]

Self-education is vital

Self-education is vital

Tess Harris, a British citizen and CEO of Polycystic Kidney Disease Charity, was diagnosed with ADPKD (autosomal dominant polycystic kidney disease) over 40 years ago. She recounts her battle with the disease and how self-education helped her overcome the challenges she faced. What was your diagnosis, and can you briefly describe the treatment you have […]

My Tryst with Kidney Disease

My Tryst with Kidney Disease

Vijay Mohan Sharma, an 82-year-old Indian, has suffered from chronic kidney disease for 20 years. He recounts his journey from diagnosis to treatment with dyalisis, always relying on the support of family, friends, other patients and doctors to live a normal life with his disease. A Dreaded Disease Kidneys do not become diseased quickly. Unlike […]

Build your own support system

Build your own support system

Jack Johnson, a U.S. citizen, has been diagnosed with Fabry disease, a rare disorder that affects the kidney in almost all male and in many female patients. He shares his experience with enzyme replacement therapy and how he working to raise awareness about his disease, as co-founder and executive director of the Fabry Support & Information […]

Early diagnosis greatly improves your odds for recovery

Early diagnosis greatly improves your odds for recovery

Nahed ElSayed, a 47-year-old Egyptian journalist, was diagnosed with lupus erythematosus, which affected her kidneys. She recounts her painful journey of being wrongly diagnosed initially and how after an emergency hospitalisation, the right diagnosis put her back on the path of recovery. What was your diagnosis, and can you briefly describe the treatment you have received? […]

Looking good is not necessarily a sign of good health

Looking good is not necessarily a sign of good health

Beatrice Blouet, a 54 years old french writer, has been diagnosed with glomerulonephritis. In December 2020, she published a book recounting her medical adventures/misadventures (nephrology and accident). She shares her experiences and challenges she has to go through every day to live a normal life. What was your diagnosis, and can you briefly describe the […]

Fighting the battle is the only way to live

Fighting the battle is the only way to live

Farah Eslam, 25, from Egypt, had to have an artificial bladder and lives with weak kidneys. She shares her optimism and explains that for her, fighting is the only way to live a full life. What was your diagnosis, and can you briefly describe the treatment you have received? I was born with a lifelong […]

A third chance at life: surviving cancer, hepatitis C and kidney failure

A third chance at life: surviving cancer, hepatitis C and kidney failure

Dario Gozzi, a kidney disease patient from Abano Terme, Italy tells the story of his third “rebirth’. He recounts his journey leading up to his kidneys failing, being on dialysis and the long road to his kidney transplant. My life was spent between doctors and diseases for a long time. In 1987, when I was […]

Finding organizational support to cope with kidney failure

Finding organizational support to cope with kidney failure

R.J. Sajaykumar, aged 50, recounts how renal failure left him physically, financially and emotionally depleted in 2002. With the support of a committed nephrologist and a Chennai (India) based NGO, he survived and gained sustainable access to dialysis.  I was diagnosed with end stage renal failure during 2002. I was affected with multiple complications and […]

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