Navigating Henoch-Schönlein Purpura And Embracing Life After Kidney Transplant
Dr Lajja Sutaria, from India, spent much of her life battling an autoimmune disease called Henoch-Schönlein purpura. She was just 17 when the first symptoms appeared, marking the beginning of a 17- year struggle with the disease. Today, after receiving a kidney transplant, she has a new lease on life. In her testimony, Dr Lajja […]
Overcoming challenges to secure a kidney transplant for her daughter
Natasha, from East Africa, discovered that her 14-month old daughter, Anayah, had interstitial nephritis. This diagnosis marked the beginning of a long and arduous journey to find a kidney donor and save her child. The path was fraught with alternating waves of hope and disappointment. After months of waiting, the generosity of a donor finally saved […]
Breaking Denial: The Race for a Transplant to Overcome Polycystic Kidney Disease
Stephen Adams, 45, from Scotland, discovered he had Polycystic Kidney Disease (PKD) seven years ago, following a routine examination. Despite leading a seemingly normal life, the progression of PKD led to a sudden need for a kidney transplant, prompting a whirlwind of medical procedures and emotional challenges. Through the generosity of a friend’s donation, Stephen […]
To My Fellow Kidney Warriors: Let’s Celebrate Life in Whatever Capacity We Can!
Kousalya Govindraj, from India, reflects on her journey of resilience and adaptation in the face of medical challenges. Losing her kidney transplant after over two decades due to tuberculosis complications, she shares her experiences of undergoing various health procedures, including dialysis, with unwavering determination. Despite setbacks, Kousalya emphasizes the importance of maintaining a positive outlook, […]
A Nephrologist’s Path to Resilience and Compassion
Dr. Edison Souza, from Brazil, shares the heartwarming tale of Maria, a kidney transplant recipient. Maria’s journey from despair to joy, marked by the reunion with her pet dog and the selfless sacrifice for her son’s transplant, underscores the profound impact of accurate information and resilience in the realm of organ transplantation. For over three […]
Fighting CKD at 13 in Malawi: A call to action for better kidney care
Ken Ngwira, 13, from Malawi, underwent a profound transformation when kidney failure disrupted his once-healthy childhood in 2021. Enduring dialysis treatments for nearly 10 hours a week, Ken’s education was sacrificed, leaving him with monumental health challenges compounded by financial strain and limited resources. His story sheds light on the urgent need for systemic change […]
Dialysis Diaries: 19 Years Strong, Fighting for Kidney Health in Malawi
Samuel Kumwanje, 48, from Malawi, embarked on an unforeseen journey when diagnosed with kidney failure at 28 years old. Initially misdiagnosed and treated for malaria, his resilience and determination became the driving force throughout a 19-year dialysis saga. Facing challenges, from unhealed fractures that restricted his mobility to a wheelchair to losing his job, Samuel’s life […]
Closing the Diagnosis Gap: Navigating Chronic Kidney Disease in the Young and Fit
Benjamin Stokes, 34, from Maidenhead, South East England, recounts his compelling journey through IgA Nephropathy, a diagnosis he received at the age of 22, leading to End Stage Kidney Disease (ESKD), and ultimately to a life-changing kidney transplant. In this poignant narrative, he shares the hurdles of accessing care, the impact of gaps in early […]
Unveiling the power of social media in chronic kidney disease awareness
Pandian, 52, from India, shares his journey with Chronic Kidney Disease (CKD) arising from diabetes and high blood pressure. This personal narrative highlights the financial challenges and limited awareness surrounding CKD. He champions the transformative role of social media in raising CKD awareness, and emphasizes the need for proactive initiatives like counselling to prepare individuals […]
Navigating Medication Access Challenges in Kidney Patients: A Perspective from Nigeria
Rev. Canon Victor A. I. Ezeibe, from Nigeria, explores the challenges in accessing essential medications as a kidney transplant recipient. The blog unravels the intricate process of obtaining drugs from abroad, while shedding light on the inherent risks, including lost shipments. The blog emphasizes the pivotal role of uninterrupted medication access for kidney patients, urging […]
