Blog

Don’t Pity Me, Pity My Situation

Don’t Pity Me, Pity My Situation

Joab Wako, a kidney transplant patient, is raising awareness about the reality of living with chronic conditions and the unfair way CKD patients are often treated. In particular, he describes the difficulties for a chronically ill patient to receive health insurance coverage in Kenya. As a person living with chronic kidney disease, I am always […]

My companion for life: Dialysis

My companion for life: Dialysis

Sara Ammar was diagnosed with Chronic Kidney Disease (CKD) when she was 32 years old. Ever since she has been writing a blog to spread positivity about living with CKD. She shares her experience of going through hemodialysis over the last four years and how she has learned to be grateful for what she has […]

A Slot in Dialysis

A Slot in Dialysis

Guillermo Garcia-Garcia is a nephrologist based in Mexico and he is sharing his experience with kidney disease. He describes the emotional story of a father struggling to get a slot in hemodialysis for his son and the difficulty for those in need to have access to treatment.  One of many days, by the morning, I’m […]

My Kidney Disease Journey

My Kidney Disease Journey

Theresa Mocek is a 38-year-old housewife living with Minimal Change Disease, IgA Nephropathy, and Nephrotic Syndrome. She shares her story with kidney disease, from sudden onset, treatment and remission at 19 years old to her relapse ten years later. Now she helps others struggling with the same problems she has faced living with CKD.   […]

My son’s kidney story [3/3]

My son’s kidney story [3/3]

Daniella Effrim-Botchey, tells of the real-life struggles of a mother-to-be whose unborn son who was diagnosed with posterior urethral valves (PUV). She poignantly describes the emotional work of coming to terms with the diagnosis and how she adapted to caring for her son whose kidneys would ultimately fail. When faced with difficult circumstances, she found […]

My son’s kidney story [2/3]

My son’s kidney story [2/3]

Daniella Effrim-Botchey, tells of the real-life struggles of a mother-to-be whose unborn son who was diagnosed with posterior urethral valves (PUV). She poignantly describes the emotional work of coming to terms with the diagnosis and how she adapted to caring for her son whose kidneys would ultimately fail. When faced with difficult circumstances, she found […]

My son’s kidney story [1/3]

My son’s kidney story [1/3]

Daniella Effrim-Botchey, tells of the real-life struggles of a mother-to-be whose unborn son who was diagnosed with posterior urethral valves (PUV). She poignantly describes the emotional work of coming to terms with the diagnosis and how she adapted to caring for her son whose kidneys would ultimately fail. When faced with difficult circumstances, she found […]

Getting your life back from Polycystic Kidney Disease

Getting your life back from Polycystic Kidney Disease

Sue Jobson is a British health coach, healer and writer who inspires people with kidney disease to get their health, happiness and freedom back. Here she shares her story on how she adapted her life after an out-of-the-blue diagnosis with Polycystic Kidney Disease almost 30 years ago, and how she now helps others to adopt […]

What should you know about kidney disease and mental health?

What should you know about kidney disease and mental health?

It is very common for people with Chronic Kidney Disease (CKD), especially those who reach End Stage Renal Disease (ESRD), to experience mental health disorders.[1] Indeed, once ESRD is diagnosed, patients undergo a huge amount of stressors: they spend at least three days per week in a dialysis center or in a hospital for about […]

Reducing inequities in kidney health for Indigenous people in Australia

Reducing inequities in kidney health for Indigenous people in Australia

April is a big month for kidney health in Australia. The World Congress of Nephrology is in Melbourne and Kidney Health Week, the national awareness week for kidney disease led by Kidney Health Australia (as the peak kidney consumer organisation in Australia) runs from 8 – 14 April. The Kidney Health Week campaign ‘Don’t Be […]

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