Build your own support system

Build your own support system

Jack Johnson, a U.S. citizen, has been diagnosed with Fabry disease, a rare disorder that affects the kidney in almost all male and in many female patients. He shares his experience with enzyme replacement therapy and how he working to raise awareness about his disease, as co-founder and executive director of the Fabry Support & Information […]

Early diagnosis greatly improves your odds for recovery

Early diagnosis greatly improves your odds for recovery

Nahed ElSayed, a 47-year-old Egyptian journalist, was diagnosed with lupus erythematosus, which affected her kidneys. She recounts her painful journey of being wrongly diagnosed initially and how after an emergency hospitalisation, the right diagnosis put her back on the path of recovery. What was your diagnosis, and can you briefly describe the treatment you have received? […]

Looking good is not necessarily a sign of good health

Looking good is not necessarily a sign of good health

Beatrice Blouet, a 54 years old french writer, has been diagnosed with glomerulonephritis. In December 2020, she published a book recounting her medical adventures/misadventures (nephrology and accident). She shares her experiences and challenges she has to go through every day to live a normal life. What was your diagnosis, and can you briefly describe the […]