8 March 2012
hi all, i am new here, but not new to the dialysis world. I am now in my 20th year of dialysis, Hemo and PD experience to share
Like i statement in the re: i am new here, but not new to the dialysis world. I am towards the end of my 20th year of my dialysis life. I had a ten year run with Hemo, but due to complications with numerous AV Grafts and repairs from angiograms, that resulted into angioplasties, mainly because of my high risk of developing low blood flow, and access narrowing, and of course clotting issues. I have very small veins, so the only alternative i had to have an access was having a graft put in place, i was never told about another form of dialysis, when i was first diagnosed with ESRD in 1990, my neph only told me about hemodialysis, but when i began hemodialysis, about a year and 1/2, i heard about PD. After my fourth graft in my leg, began to fail, i had to transition to PD, in which i am towards the end of the 10th year of PD. I did receive the blessing of a cadaver kidney back in 1993, but due to complications from the anti-rejection meds, (the cycloporin in the second month of receiving the transplant, caused my creatinine to elevate and my b/p to go out of control - and lowering the cycloporin med, caused the immune system to awaken (become active) and began to search for this foreign substance inside me (the cadaver kidney), and i went through this for two months, my neph decided to increase my presnidsone med to 500mg a day to help in avoiding another rejection, but of course in the fourth month, i had another rejection, and another dose of OKT3, which it was my third rejection, since having two, while hospitalized after transplantation, the third time of OKT3, was my last, because i was informed that it could cause cancer, if i had this drug more than three times. Of course, i lost the transplant in the fourth month, ended up comatose for several weeks, there is more, but way too much to go into on this post, however, i have shared this in more deeper detail in my second book - My Twenty Year Journey with PKD in the Dialysis World - I share my entire 20 year journey with my readers from my pre-dialysis days, to my first hemo experience, as well as what transpired during my 10 years of Hemo, and on to my first transplant experience, my transition back to Hemo, and on to my transition to PD. I also share some very important nutritional facts about the renal friendly recipes that i have been collecting for over two decades, with easy cooking tips to help in managing a renal diet. As a bonus i share an array of renal friendly recipes, but keep in mind, i am a non-diabetic dialysis pt. I have polycystic kidney disease (PKD for short). If you are interested, you can read a review of my books by Dr. Jenna Henderson, who has read both my books, and happen to be a dialysis pt. herself, she is a naturopathic dr, who has great tips to help in accomodating the natural substance for a renal diet. check it out at your leisure, online at www.holistickidney.com, just click on article, located at top of screen and scroll down to the fourth review - My Twenty Year Journey with PKD in the Dialysis World. I look forward to chatting with you guys and sharing my experience and knowledge with anyone who is faced with dialysis for continued survival.
Best Regards,
Glo
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Replies to This Discussion
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Permalink Reply by Gloria Ann Jeff-Moore on -
Hi all, when it rains, it pours, after several months of agonizing pain in my left thumb and index finger, I finally saw my primary, who scheduled an x-ray on my left thumb, and the results indicated a diagnose of RA in my left hand. I received several cortisone injections, and after watching Montel Williams as a guest co-host of the morning show - Goodday Sacramento, he shared that he will be conducting one of his Living Well seminar at the Hyatt Regency, Sacramento. I attended and the seminar was very productive and uplifting. I do share my entire evening with Montel on my blog, which Montel suggested that i start, especially publishing two books so far. You can access my blog at www.myrenallife.blogspot.com. I hope you guys will visit real soon, and become a follower. Comments are very appreciated. I hope all you guys had an enjoyable and relaxing 4th of July holiday.
take care and all the best to you,
Glo
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Permalink Reply by parker on
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'Polycystic Kidney Disease' is a histological terminology. From the cytologists’ point of view the disease is also known as renal tubular epithelial cell disease. The cause of PKD stems from autosomal dominant inheritance. The renal tubular epithelial cells are phenotypically transformed to cyst wall epithelial cells that are continuously secreting cyst fluid which makes cysts grow then damage normal renal structure, gradually deteriorating renal barrier function, concentration function, reabsorption function and regulatory function. Eventually such symptoms as hematuria and occult blood occur.
PKD is a hereditary disease. One characteristic of PKD is family history. Children have a 50% chance of suffering from PKD if their parent is afflicted by the disease. When entering adulthood, some patients with PKD develop Polycystic Liver Disease and calculus.
Renal tubular epithelial cells abnormal growth is PKD’s feature. Renal tubular epithelial cells are phenotypically transformed to cyst wall epithelial cells which can secrete cyst fluid. The cyst liquid that has no way of excretion accumulates in growing cysts which then constrict kidney tissue and alter normal renal structure over time. That is way some patients have discomfort abdomen and all have Hypertension and abnormal result in Renal Function Test and Urine Test.
As no one can solve the problem of genes, clinically, proper treatment focuses on eliminating cysts. As Western Medicine can’t treat disease from the root, we use a combination of Traditional Chinese Medicine and Western Medicine in which Western Medicine aims at eliminating symptoms and Traditional Chinese Medicine is also used to curb the growth of cysts. The therapeutic mechanism is to inactivate epithelial cells that can secrete cyst fluid. Meanwhile improve sanguimotor permeability which makes organ tissue absorb the cyst liquid then discharge cyst liquid through urine, realizing the goal of treating the disease from the root. And the disease will never occur by using this therapeutic method.
Article source:http://www.kidneycn.com/kidney-diseases/polycystic-kidney/treatment...
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Permalink Reply by Pyrrhus Kim Paqueen on -
wow... your story inspires me... I am also a dialysis patient for almost 5 years now.... thanks for sharing your story
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